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MyThalassaemia is one of our computerised diseases registries. We also develop other diseases registries such as the Haemophilia registy. We are actively providing software solution since 2003 and are particularly active in the United Kingdom and Malaysia.
MyThalassaemia is a user friendly system that has been developed over several years. Some of the strenths are
- A comprehensive registry that hold patients diagnosis and treatment records
- In use by the Ministry of Health Malaysia since 2007
- Extensive reporting for management, planning and research purposes
- Constantly being updated with new features
There is no other thalassaemia registry in the world that can mathch MyThalassaemia or come close to it.
MyTalasemia is our version for the Malaysian Ministry of Health and it is the largest thalassaemia registry in the world.
Patients Large set of patients' records from birth
Hospitals Used by participating government and university hospitals
States Reports can be produced based on center, state or national
Years Data collected since 2007
MyThalassaemia has numerous reports on patients, centres, states as well as national. Reports can also be produced for any specified year. Sample reports below are based on test data to show what the system is capable of reporting.
Ferritin LevelPatient serum ferriten trend
Height chartHeight against growth curve
Weight ChartWeight against growth curve
Survival AnalysisKaplan Meier Survival Analysis
DiagnosisBreakdown by diagnosis
ChelationBreakdown by chelation
EthnicBreakdown by ethnic
PatientsBreakdown by age group
Thalassaemia in Malaysia
Status of thalassaemia in Malaysia published in BMJ with data extracted from our system.
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